June 1st of each year was designated World Hypoparathyroidism Awareness Day in 2010logoforslag RARE DISEASE valgte

by the Nordic hypoPARA Organisation, Hypoparathyroidism Association, Inc, USA and Hypopara UK.

New national approved hypoPARA organisations have been founded since 2010:

Danish hypoPARA Organisation founded in 2012, Swedish hypoPARA Organisation founded in 2016 and hypoPARA France in 2015.

The 7th Annual World Hypoparathyroidism Awareness Day will be celebrated on June 1, 2017.

In order to help spread awareness in the Nordic countries of Europe we are delighted to mark our Awareness Day with a Nordic Social Media Awareness Banner and profile picture.

We are encouraging everyone to organise an activity or event to draw public attention to hypoPARA.

Our focus in 2016 was on the treatment of Hypoparathyroidism and in 2017 our focus was on our psychological and mental strength, despite all of the physical pains we need to endure.

We recently got the European Society of Endocrinology (ESE), Patient Information Leaflet on the Treatment of Chronic Hypoparathyroidism in Adults, translated to Norwegian, Swedish and Danish, corrected by Scandinavian Professors in Endocrinology and approved by ESE.

You may find the Leaflets here: ESE brosjyre HypoPara NO_web

ese-brochure-hypopara-dk-web

ESE broschyr SE web

The leaflet is based on the guideline written by an expert Endocrine Team working with the European Society of Endocrinology.

Our further goal is to get the translation of the Leaflet approved by ESE into other Nordic languages as well. We wish to distribute the Leaflet free of charge to Clinics in Endocrinology.